Monthly Archives: April 2013

“It’s funny how your standards slip isn’t it?”

Elijah is stable. Dr’s are happy with his progress so far after surgery. He’s half the size he was this time last week, due to reduced swelling. He has 3 available limbs now without cannulas. They had to shave his … Continue reading

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One month old today

Home, 27 April 2013, 11.00pm Jenny and I have had to vacate our room at Jessop’s Hospital as another couple’s need was deemed greater than ours. When you only live a ten minute drive from the hospital, it’s worrying to … Continue reading

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Day 2 post op.

Elijah’s recovering well. He’s more than 48 hours post op. His ventilation settings are reducing, he may come off the ventilator onto CPAP again this weekend. His catheter is out, he’s regulating his own blood pressure, and calm in himself. … Continue reading

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Better an empty house than a bad tenant

So much has happened over the past few days that we’ve focused on reporting events as accurately as possible. I’ve had neither the time nor motivation to reflect on how Jenny and I are feeling. Now that things are a … Continue reading

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Short bowel syndrome

Elijah’s operation did not take long (less than an hour), but since then we have had a lot of information to absorb. I was hoping to be able to write an update offline while I sat with him in recovery, … Continue reading

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Go for your life

Jessop’s Sheffield, 24 April 11:30am Jenny here. The surgeons are just starting now. He has 2 consultant anaesthetists, 2 surgeons and at least 4 other people in the team, trolleys of gear lining the corridor. There was a delay while … Continue reading

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Slight change of plan

Brief update: 23 April, 6:26 pm Plan is for surgery tomorrow morning. Normally he would be transported 200m down the rd to sheffield children’s hospital, but due to type of ventilation he is on he can’t be moved so the … Continue reading

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‘and…what else have you got?’

Jessop’s, Sheffield, 23 April 2013, 10:51 We’ve had to leave the room for the ward round so time for a brief update. I added a short update to last night’s post to say Elijah has done a wee. This is … Continue reading

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Need a wee

Jessop wing hospital, Sheffield 22 April 2013, 11.00pm Relatively speaking, Elijah has improved a bit today. He is still very sick and as we know things can change without much warning. At the moment his heart rate, blood pressure and … Continue reading

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Jessop’s, sheffield, 22 april 2013 08:03am

Given the potential for Elijah’s situation to change so rapidly, I feel the need to time stamp our posts. We’re both still in shock from Saturday and cannot quite comprehend how such a lovely day turned out so badly. Elijah’s … Continue reading

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